Appraisals, hidden disabilities and me
25 September 2019
This time last year, work goals and objectives were being set; it was time to take my career to the next level after returning from a year’s maternity leave. It was a good opportunity to set goals around what I wanted to achieve at work in the coming year. But you know what they say about the best laid plans…for me they were completely obliterated around July 2018. Type 1 diabetes had other ideas and took a head long charge into my life as our two year old daughter was admitted to A&E with diabetic ketoacidosis (DKA for short). I won’t go into detail here, but if you’ve reached this stage of illness you really need to buckle in for one hell of a ride. As a parent you can do nothing except wait and watch as amazing NHS doctors and nurses bring your child back from the brink. And they did. And then you remember to breathe again.
Before my family could process what had happened, a whole new list of objectives was given to us whether we liked it or not.
Objective 1: Learn new skills
Have you ever considered training in injecting your child? No, me neither, but when the doctors tell you that injecting insulin is as important to your child as oxygen, you understand how important this new skill is.
Without insulin our little lady would not be able to unlock the crucial energy source from her food that we so often take for granted. So we began a crash course and left the hospital dazed and confused a few days later, holding the biggest bag of prescriptions I’ve ever seen. We learnt to do finger pricks to test sugar levels, injecting insulin around five times a day.
There were tears and tantrums (that was just me) as we tried to incorporate this new routine into our daily lives. At first you’re so busy firefighting that you just take it one injection at a time, but then you start wondering - how will we ever be able to sit at a restaurant and have nice meals together when so much planning is involved? You then remind yourself that you would be crazy thinking you’d be sitting having a relaxed meal in a restaurant with a two and four year old at the best of times anyway.
Progress against objective: ninja status in the injecting arena.
Objective 2: Manage and maintain
A sentence that you will often hear with diabetes is “the good thing is that it can be managed”. What I’ve since realised is that there is an awful lot of work that goes on in the background to manage and maintain sugar levels, particularly with young children. Our little lady can be hyper (high sugar levels) one hour, then drop like a stone to hypo (low sugar levels) in the next couple of hours, due to how quickly she reacts to food and insulin. We now have to carb count all the food (if you see a family with scales measuring the bread for a sandwich you now know why). You then need to punch in a number to the meter that works out how much insulin is needed. I’ve found it’s a great way to brush up on your maths.
Just to give you an idea of the process of managing our medicine cupboard, it used to consist of a couple of half-used Calpol bottles, a tube of Savlon cream, and plasters of varying sizes. These days we use up a few more shelves than we used to - and this doesn’t include the insulin cartridges in the fridge.
Progressive against objective: Have built excellent relationship with the local pharmacist, who always tells us how great we’re doing and keeps us encouraged.
Objective 3: Research new technologies
This is the only objective I had on my list at the start of the year - ‘Research the benefits of new technology and understand where the pitfalls lie’. This objective has taken on a new lens as I’ve been researching the benefits of technology and its impact on health. We’re already benefiting from our (not insignificant) investment in a glucose monitor - one feature of this amazing device is to alarm us if our daughter ‘drops’ too much in her sleep. Just one simple step forward in diabetes-related technology can be a game changer.
Of course, I’m now even more of a technology groupie than before and I’m currently learning about the closed loop technology that’s becoming available. I’m reading all the fantastic research that’s going on, and discovering a whole other world about bio hacks (which, by the way, is fascinating).
Current status: continuing to research and implement new technologies, albeit different to those identified in the original objectives.
And as for my little lady, well she has sort of become quite similar to the queen, in that she now has two birthdays a year. Her real birthday and her diaversary (diagnosis day – I promise you this is a real thing).
So as this appraisal year ended, I looked back and realised what an amazing network of family, friends, colleagues, nursery carers and a dedicated diabetes team has done to help us get through these changes. Having the support of work and having policies in place such as parental leave to give us time to process these changes was a huge benefit and helped give us the space and time we needed to adjust to our new lifestyle. I also made use of the PwC ‘Be Well, Work Well’ site and used the employee assistance programme where I could talk through the changes and learn how to process it all.
They say you need a village to help raise a family but sometimes you might just need a mini city of people to help you along the way. If you find yourself reflecting on a year that didn’t quite turn out how you expected – be kind to yourself and see what you can learn from it to keep you moving forward. And for those of you who notice a colleague who’s struggling - why not take them for a cup of tea and, while you’re chatting, let them know how much support is around to help everyone feel included – from speaking to managers and career coaches, to looking for more formal support internally and checking out what policies are in place to help.
If you’d like to know more about the great work going on for Type 1 diabetes please take a look at the charity JDRF.